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authIdHal_s : anne-cambon-thomsen

Linking health and administrative data for maternal, child and young adult health

Anita Burgun , Dina V Oksen , Wolfgang Kuchinke , Hans-Ulrich Prokosch , Thomas Ganslandt , et al.
9. European Public Health Conference, Nov 2016, Vienne, Austria. ⟨10.1093/eurpub/ckw168.038⟩
Conference papers hal-01861720v1
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FAIRness and Immunogenetics

Mogens Thomsen , Laurence Mabile , Romain David , Anne Cambon-Thomsen
EFI (European Forest Institute ) 2021 Annual Conference, Jun 2021, Amsterdam, Netherlands. , 2021
Conference poster hal-03740834v1
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Developing a guideline to standardize the citation of bioresources in journal articles (CoBRA)

Elena Bravo , Alessia Calzolari , Paola de Castro , Laurence Mabile , Federica Napolitani , et al.
BMC Medicine, 2015, 13, pp.33. ⟨10.1186/s12916-015-0266-y⟩
Journal articles inserm-01978646v1
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Biobankers: Treat the Poison of Invisibility with CoBRA, a Systematic Way of Citing Bioresources in Journal Articles

Federica Napolitani , Alessia Calzolari , Anne Cambon-Thomsen , Laurence Mabile , Anna Maria Rossi , et al.
Biopreservation and Biobanking, 2016, 14 (4), pp.350-352. ⟨10.1089/bio.2015.0105⟩
Journal articles inserm-01978603v1
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Mapping the translational science policy 'valley of death

Eric Meslin , Alessandro Blasimme , Anne Cambon-Thomsen
Clinical and Translational Medicine, 2013, 2 (1), pp.14. ⟨10.1186/2001-1326-2-14⟩
Journal articles inserm-00849416v1
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Proposal for a European Public Health Research Infrastructure for Sharing of health and Medical administrative data (PHRIMA).

Anita Burgun , Dina V Oksen , Wolfgang Kuchinke , Hans-Ulrich Prokosch , Thomas Ganslandt , et al.
Studies in Health Technology and Informatics, 2015, 216, pp.1005. ⟨10.3233/978-1-61499-564-7-1005⟩
Journal articles hal-01232643v1
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Judging health risk as a function of risk factors and type of illness: Do people weight risk factors in a flexible way?

Myriam Guedj , Etienne Mullet , Anne Cambon-Thomsen
Journal of Health Psychology, 2016, 21 (5), pp.832-843. ⟨10.1177/1359105314539532⟩
Journal articles hal-01926515v2
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Measuring the contribution of tumor biobanks to research in oncology: Surrogate indicators and bibliographic output

Véronique Hofman , Marius Ilie , Elodie Long , Kevin Washetine , Christian Chabannon , et al.
Biopreservation and Biobanking, 2013, 11 (4), pp.235-244. ⟨10.1089/bio.2013.0015⟩
Journal articles inserm-01978789v1
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A new classification of HLA-DRB1 alleles based on acid-base properties of the amino acids located at positions 13, 70 and 71: impact on ACPA status or structural progression, and meta-analysis on 1235 patients with rheumatoid from two cohorts (ESPOIR and EAC cohort).

Adeline Ruyssen-Witrand , Hanna W van Steenbergen , Jurgen van Heemst , Pierre-Antoine Gourraud , Delphine Nigon , et al.
RMD Open : Rheumatic & Musculoskeletal Diseases, 2015, 1 (1), pp.e000099. ⟨10.1136/rmdopen-2015-000099⟩
Journal articles hal-01560005v1
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How to assess FAIRness to improve crediting and rewarding processes for data sharing? A step forward towards an extensive assessment grid

Romain David , Laurence Mabile , Mohamed Yahia , Anne Cambon-Thomsen , Anne-Sophie Archambeau , et al.
RDA 13th (P13) Plenary Meeting, Apr 2019, Philadelphia, United States. , 2019, ⟨10.5281/ZENODO.2625721⟩
Conference poster hal-02094678v1

Disclosing results to genomic research participants: differences that matter.

Alessandro Blasimme , Alexandra Soulier , Sophie Julia , Samantha Leonard , Anne Cambon-Thomsen
American Journal of Bioethics, 2012, 12 (10), pp.20-2. ⟨10.1080/15265161.2012.699149⟩
Journal articles inserm-00803909v1
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Evaluation tool of FAIR criteria literacy and compliance to foster research data sharing

Romain David , Laurence Mabile , Mohamed Yahia , Mogens Thomsen , Anne Cambon-Thomsen
2. Open Science FAIR Conference: « Synergies for Sustainable, Open and Responsible Research », Sep 2019, Porto, Portugal. , 2019
Conference poster hal-02164148v1

Les Fondements de l'Ethique de la Recherche en Droit Communautaire [The Foundation of Research Ethics in Community Law].

Gauthier Chassang , Emmanuelle Rial-Sebbag , Anne Cambon-Thomsen
International Journal of Bioethics, 2011, 22 (1), pp.187-203, 218
Journal articles inserm-00616773v1
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Producing 'Human Elements Based Medical Technologies' in Biotech Companies: Some Ethical and Organisational Ingredients for Innovative Cooking

Virginie Tournay , Emmanuelle Rial-Sebbag , Doerte Bemme , Aurélie Mahalatchimy , Céline Granjou , et al.
Science Technology and Society, 2013, 18 (1), pp.93 - 114. ⟨10.1177/0971721813484381⟩
Journal articles hal-01560540v2
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Biobanking and Data Sharing: a Plurality of Exchange Regimes

Fabien Milanovic , Anne Cambon-Thomsen , David Pontille
Genomics, society, and policy / ESRC Genomics Network, 2007, 23 (1), pp.17-30. ⟨10.1186/1746-5354-3-1-17⟩
Journal articles halshs-00268990v2
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FAIRness Literacy: The Achilles’ Heel of Applying FAIR Principles

Romain David , Laurence Mabile , Alison Specht , Sarah Stryeck , Mogens Thomsen , et al.
CODATA Data Science Journal, 2020, 19 (32), pp.1-11. ⟨10.5334/dsj-2020-032⟩
Journal articles hal-02483307v2
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Research data alliance - RDA an organisation towards social and technical bridges to enable the open sharing and re-use of data with full credit to FAIR (Findable, Accessible, Interoperable, Reusable) data requirements.

Anne Cambon-Thomsen , Laurence Mabile , Mogens Thomsen , Romain David
JCAD 2019, Journées Calcul Données : Rencontres scientifiques et techniques du calcul et des données., Oct 2019, Toulouse, France. , Text mainly from RDA website., 2019, ⟨10.5281/zenodo.3479152⟩
Conference poster hal-02310949v1
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Title: How to responsibly acknowledge research work in the era of big data and biobanks: Ethical aspects of the Bioresource Research Impact Factor (BRIF)

Heidi Carmen Howard , Deborah Mascalzoni , Laurence Mabile , Gry Houeland , Emmanuelle Rial-Sebbag , et al.
Journal of Community Genetics, 2017, ⟨10.1007/s12687-017-0332-6⟩
Journal articles inserm-01978434v1

Genomic incidental findings: reducing the burden to be fair.

Anastova Velizara , Alessandro Blasimme , Julia Sophie , Anne Cambon-Thomsen
American Journal of Bioethics, 2013, 13 (2), pp.52-4. ⟨10.1080/15265161.2012.754066⟩
Journal articles inserm-00803907v1
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In need for a modern Daedalus? The challenging regulatory path for marketing gene therapy medicinal products in China and Europe

Aurélie Mahalatchimy , Anne-Marie Duguet , Wen Meng , Heidi Carmen Howard , Anne Cambon-Thomsen , et al.
Q. Yanping, A.-M. Duguet. Biotechnology Medicine and Law, China University of Political Science and Law Press, 2018, 978-7-5620-8420-4
Book sections halshs-01938345v1
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New insights into the genetics of immune responses in rheumatoid arthritis.

Adeline Ruyssen-Witrand , Arnaud Constantin , Anne Cambon-Thomsen , Mogens Thomsen
Tissue Antigens, 2012, 80 (2), pp.105-18. ⟨10.1111/j.1399-0039.2012.01939.x⟩
Journal articles inserm-00730978v1
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Quantifying the use of bioresources for promoting their sharing in scientific research.

Laurence Mabile , Raymond Dalgleish , Gudmundur Thorisson , Mylène Deschênes , Robert Hewitt , et al.
GigaScience, 2013, 2 (1), pp.7. ⟨10.1186/2047-217X-2-7⟩
Journal articles inserm-00823375v1
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Trends in ethical and legal frameworks for the use of human biobanks.

Anne Cambon-Thomsen , Emmanuelle Rial-Sebbag , Bartha Maria Bm Knoppers
European Respiratory Journal, 2007, 30 (2), pp.373-82. ⟨10.1183/09031936.00165006⟩
Journal articles inserm-00168261v1
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Implementing FAIR in data sharing: who are the actors and what are their responsibilities ?

Romain David , Laurent Dollé , Alison Specht , Sarah Stryeck , Mohamed Salah Yahia , et al.
RDA Plenary P15, Mar 2020, Melbourne, Australia. , 2020, ⟨10.5281/zenodo.3743946⟩
Conference poster hal-02562211v1
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Favouring the sharing of samples and data in research. Crediting and Rewarding

Mogens Thomsen , Romain David , Laurence Mabile , Anne Cambon-Thomsen , Sharc Interest Rda
33rd European Immunogenetics and Histocompatibility Conference, Portugal, 8-11 May 2019, May 2019, Lisbon, Portugal. , 93 (5), pp.256-401, 2019, Special Issue: Abstracts for the 33rd European Immunogenetics and Histocompatibility Conference, Portugal, 8-11 May 2019. ⟨10.1111/tan.13518⟩
Conference poster hal-02150822v1
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Operationalizing and evaluating the FAIRness concept for a good quality of data sharing in Research: the RDA-SHARC-IG (SHAring Rewards and Credit Interest Group)

Romain David , Laurence Mabile , Mohamed Yahia , Anne Cambon-Thomsen , Anne-Sophie Archambeau , et al.
assemblée MaDICS 2018, Nov 2018, Strasbourg, France. , 2018, ⟨10.5281/zenodo.1745374⟩
Conference poster hal-01929834v1
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Towards New Metrics For Bioresource Use

Laurence Mabile , Paola de Castro , Elena Bravo , Barbara Parodi , Mogens Thomsen , et al.
20th International Conference on Electronic Publishing, 2016, Gottingen, Germany
Conference papers inserm-01978631v1