Linking health and administrative data for maternal, child and young adult health
Anita Burgun
,
Dina V Oksen
,
Wolfgang Kuchinke
,
Hans-Ulrich Prokosch
,
Thomas Ganslandt
,
et al.
Conference papers
hal-01861720v1
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FAIRness and Immunogenetics
Mogens Thomsen
,
Laurence Mabile
,
Romain David
,
Anne Cambon-Thomsen
EFI (European Forest Institute ) 2021 Annual Conference , Jun 2021, Amsterdam, Netherlands.
, 2021
Conference poster
hal-03740834v1
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Developing a guideline to standardize the citation of bioresources in journal articles (CoBRA)
Elena Bravo
,
Alessia Calzolari
,
Paola de Castro
,
Laurence Mabile
,
Federica Napolitani
,
et al.
Journal articles
inserm-01978646v1
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Biobankers: Treat the Poison of Invisibility with CoBRA, a Systematic Way of Citing Bioresources in Journal Articles
Federica Napolitani
,
Alessia Calzolari
,
Anne Cambon-Thomsen
,
Laurence Mabile
,
Anna Maria Rossi
,
et al.
Journal articles
inserm-01978603v1
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Mapping the translational science policy 'valley of death
Eric Meslin
,
Alessandro Blasimme
,
Anne Cambon-Thomsen
Journal articles
inserm-00849416v1
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Proposal for a European Public Health Research Infrastructure for Sharing of health and Medical administrative data (PHRIMA).
Anita Burgun
,
Dina V Oksen
,
Wolfgang Kuchinke
,
Hans-Ulrich Prokosch
,
Thomas Ganslandt
,
et al.
Journal articles
hal-01232643v1
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Judging health risk as a function of risk factors and type of illness: Do people weight risk factors in a flexible way?
Myriam Guedj
,
Etienne Mullet
,
Anne Cambon-Thomsen
Journal articles
hal-01926515v2
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Measuring the contribution of tumor biobanks to research in oncology: Surrogate indicators and bibliographic output
Véronique Hofman
,
Marius Ilie
,
Elodie Long
,
Kevin Washetine
,
Christian Chabannon
,
et al.
Journal articles
inserm-01978789v1
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A new classification of HLA-DRB1 alleles based on acid-base properties of the amino acids located at positions 13, 70 and 71: impact on ACPA status or structural progression, and meta-analysis on 1235 patients with rheumatoid from two cohorts (ESPOIR and EAC cohort).
Adeline Ruyssen-Witrand
,
Hanna W van Steenbergen
,
Jurgen van Heemst
,
Pierre-Antoine Gourraud
,
Delphine Nigon
,
et al.
Journal articles
hal-01560005v1
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How to assess FAIRness to improve crediting and rewarding processes for data sharing? A step forward towards an extensive assessment grid
Romain David
,
Laurence Mabile
,
Mohamed Yahia
,
Anne Cambon-Thomsen
,
Anne-Sophie Archambeau
,
et al.
Conference poster
hal-02094678v1
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Disclosing results to genomic research participants: differences that matter.
Alessandro Blasimme
,
Alexandra Soulier
,
Sophie Julia
,
Samantha Leonard
,
Anne Cambon-Thomsen
Journal articles
inserm-00803909v1
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Evaluation tool of FAIR criteria literacy and compliance to foster research data sharing
Romain David
,
Laurence Mabile
,
Mohamed Yahia
,
Mogens Thomsen
,
Anne Cambon-Thomsen
2. Open Science FAIR Conference: « Synergies for Sustainable, Open and Responsible Research » , Sep 2019, Porto, Portugal.
, 2019
Conference poster
hal-02164148v1
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Les Fondements de l'Ethique de la Recherche en Droit Communautaire [The Foundation of Research Ethics in Community Law].
Gauthier Chassang
,
Emmanuelle Rial-Sebbag
,
Anne Cambon-Thomsen
International Journal of Bioethics , 2011, 22 (1), pp.187-203, 218
Journal articles
inserm-00616773v1
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Producing 'Human Elements Based Medical Technologies' in Biotech Companies: Some Ethical and Organisational Ingredients for Innovative Cooking
Virginie Tournay
,
Emmanuelle Rial-Sebbag
,
Doerte Bemme
,
Aurélie Mahalatchimy
,
Céline Granjou
,
et al.
Journal articles
hal-01560540v2
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Biobanking and Data Sharing: a Plurality of Exchange Regimes
Fabien Milanovic
,
Anne Cambon-Thomsen
,
David Pontille
Journal articles
halshs-00268990v2
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FAIRness Literacy: The Achilles’ Heel of Applying FAIR Principles
Romain David
,
Laurence Mabile
,
Alison Specht
,
Sarah Stryeck
,
Mogens Thomsen
,
et al.
Journal articles
hal-02483307v2
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Research data alliance - RDA an organisation towards social and technical bridges to enable the open sharing and re-use of data with full credit to FAIR (Findable, Accessible, Interoperable, Reusable) data requirements.
Anne Cambon-Thomsen
,
Laurence Mabile
,
Mogens Thomsen
,
Romain David
JCAD 2019, Journées Calcul Données : Rencontres scientifiques et techniques du calcul et des données. , Oct 2019, Toulouse, France.
, Text mainly from RDA website. www.rd-alliance.org/about-rda, 2019,
⟨10.5281/zenodo.3479152⟩
Conference poster
hal-02310949v1
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Title: How to responsibly acknowledge research work in the era of big data and biobanks: Ethical aspects of the Bioresource Research Impact Factor (BRIF)
Heidi Carmen Howard
,
Deborah Mascalzoni
,
Laurence Mabile
,
Gry Houeland
,
Emmanuelle Rial-Sebbag
,
et al.
Journal articles
inserm-01978434v1
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Genomic incidental findings: reducing the burden to be fair.
Anastova Velizara
,
Alessandro Blasimme
,
Julia Sophie
,
Anne Cambon-Thomsen
Journal articles
inserm-00803907v1
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In need for a modern Daedalus? The challenging regulatory path for marketing gene therapy medicinal products in China and Europe
Aurélie Mahalatchimy
,
Anne-Marie Duguet
,
Wen Meng
,
Heidi Carmen Howard
,
Anne Cambon-Thomsen
,
et al.
Q. Yanping, A.-M. Duguet. Biotechnology Medicine and Law , China University of Political Science and Law Press, 2018, 978-7-5620-8420-4
Book sections
halshs-01938345v1
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New insights into the genetics of immune responses in rheumatoid arthritis.
Adeline Ruyssen-Witrand
,
Arnaud Constantin
,
Anne Cambon-Thomsen
,
Mogens Thomsen
Journal articles
inserm-00730978v1
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Quantifying the use of bioresources for promoting their sharing in scientific research.
Laurence Mabile
,
Raymond Dalgleish
,
Gudmundur Thorisson
,
Mylène Deschênes
,
Robert Hewitt
,
et al.
Journal articles
inserm-00823375v1
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Trends in ethical and legal frameworks for the use of human biobanks.
Anne Cambon-Thomsen
,
Emmanuelle Rial-Sebbag
,
Bartha Maria Bm Knoppers
Journal articles
inserm-00168261v1
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Implementing FAIR in data sharing: who are the actors and what are their responsibilities ?
Romain David
,
Laurent Dollé
,
Alison Specht
,
Sarah Stryeck
,
Mohamed Salah Yahia
,
et al.
Conference poster
hal-02562211v1
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Favouring the sharing of samples and data in research. Crediting and Rewarding
Mogens Thomsen
,
Romain David
,
Laurence Mabile
,
Anne Cambon-Thomsen
,
Sharc Interest Rda
33rd European Immunogenetics and Histocompatibility Conference, Portugal, 8-11 May 2019 , May 2019, Lisbon, Portugal.
, 93 (5), pp.256-401, 2019, Special Issue: Abstracts for the 33rd European Immunogenetics and Histocompatibility Conference, Portugal, 8-11 May 2019.
⟨10.1111/tan.13518⟩
Conference poster
hal-02150822v1
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Operationalizing and evaluating the FAIRness concept for a good quality of data sharing in Research: the RDA-SHARC-IG (SHAring Rewards and Credit Interest Group)
Romain David
,
Laurence Mabile
,
Mohamed Yahia
,
Anne Cambon-Thomsen
,
Anne-Sophie Archambeau
,
et al.
Conference poster
hal-01929834v1
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Towards New Metrics For Bioresource Use
Laurence Mabile
,
Paola de Castro
,
Elena Bravo
,
Barbara Parodi
,
Mogens Thomsen
,
et al.
20th International Conference on Electronic Publishing , 2016, Gottingen, Germany
Conference papers
inserm-01978631v1
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