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Ethical management in the constitution of a European database for leukodystrophies rare diseases.European Journal of Paediatric Neurology, 2014, 18 (5), pp.597-603. ⟨10.1016/j.ejpn.2014.04.002⟩
Journal articles
inserm-00995366v1
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Patient/family views on data sharing in rare diseases: study in the European LeukoTreat project.European Journal of Human Genetics, 2016, 24 (3), pp.338-43. ⟨10.1038/ejhg.2015.115⟩
Journal articles
inserm-01179381v1
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