%0 Journal Article %T Title: How to responsibly acknowledge research work in the era of big data and biobanks: Ethical aspects of the Bioresource Research Impact Factor (BRIF) %T Comment valoriser légitimement tout le travail de recherche à l'ère des données de masse et des biobanques: aspects éthiques du Bioresource Research Impact Factor (BRIF) %+ Centre for Research Ethics and Bioethics [Uppsala, Sweden] %+ Institute for Biomedicine [Bolzano, Italy] (Eurac Research) %+ Epidémiologie et analyses en santé publique : risques, maladies chroniques et handicaps (LEASP) %+ Plateforme sociétale genotoul [Toulouse] %A Howard, Heidi, Carmen %A Mascalzoni, Deborah %A Mabile, Laurence %A Houeland, Gry %A Rial-Sebbag, Emmanuelle %A Cambon-Thomsen, Anne %Z The BRIF initiative was supported by funds from BBMRI-LPC project, grant agreement number 313010, theme FP7-–INFRA-2012-1 and is part of the actions supported by BBMRI-ADOPT project and BBMRI-ERIC. It also benefited from the support of DIST-INIST CNRS and from the help of the Genotoul Societal platform funded by ITMO “Santé Publique”. The BRIF awareness survey was done in the context of a Marie Curie fellowship IEF-GA-2010-276136 for HCH. Discussions about stakeholders’ involvement and recognition were held in meetings and support research visiting mechanisms between the team in Toulouse and the team in Uppsala as part of the CHIP-ME Cost action IS1303; the ethical implications of BRIF has been supported by the European Union Seventh Framework Programme (FP7/2007–2013) under grant agreements no. 305444 (RD-Connect). This work was also facilitated by the COST Action IS1303 'Citizen’s Health through public-private Initiatives: Public health, Market and Ethical perspectives’, supported by COST (European Cooperation in Science and Technology) (http://www.cost.eu). %< avec comité de lecture %@ 1868-310X %J Journal of Community Genetics %I Springer %8 2017-04 %D 2017 %R 10.1007/s12687-017-0332-6 %M 28948532 %K biobank %K ethics %K academic recognition %K bioresource sharing %K research impact %K BRIF %Z Life Sciences [q-bio]/Ethics %Z Life Sciences [q-bio]/Human health and pathology %Z Life Sciences [q-bio]Journal articles %X Currently, a great deal of biomedical research in fields such as epidemiology, clinical trials and genetics is reliant on vast amounts of biological and phenotypic information collected and assembled in biobanks. While many resources are being invested to ensure that comprehensive and well-organised biobanks are able to provide increased access to, and sharing of biomedical samples and information, many barriers and challenges remain to such responsible and extensive sharing. Germane to the discussion herein is the barrier to collecting and sharing bioresources related to the lack of proper recognition of researchers and clinicians who developed the bioresource. Indeed, the efforts and resources invested to set up and sustain a bioresource can be enormous and such work should be easily traced and properly recognised. However, there is currently no such system that systematically and accurately traces and attributes recognition to those doing this work or the bioresource institution itself. As a beginning of a solution to the "recognition problem", the Bioresource Research Impact Factor/Framework (BRIF) initiative was proposed almost a decade and a half ago and is currently under further development. With the ultimate aim of increasing awareness and understanding of the BRIF, in this article, we contribute the following: (1) a review of the objectives and functions of the BRIF including the description of two tools that will help in the deployment of the BRIF, the CoBRA (Citation of BioResources in journal Articles) guideline, and the Open Journal of Bioresources (OJB); (2) the results of a small empirical study on stakeholder awareness of the BRIF and (3) a brief analysis of the ethical dimensions of the BRIF which allow it to be a positive contribution to responsible biobanking. %G English %2 https://inserm.hal.science/inserm-01978434/document %2 https://inserm.hal.science/inserm-01978434/file/JOCG%202017-post-print.pdf %L inserm-01978434 %U https://inserm.hal.science/inserm-01978434 %~ INSERM %~ UNIV-TLSE3 %~ OPENAIRE %~ ETHIQUE %~ UNIV-UT3 %~ UT3-INP %~ UT3-TOULOUSEINP %~ CERPOP