@article{darquy:inserm-01179381, TITLE = {{Patient/family views on data sharing in rare diseases: study in the European LeukoTreat project.}}, AUTHOR = {Darquy, Sylviane and Moutel, Gr{\'e}goire and Lapointe, Anne-Sophie and d'Audiffret, Diane and Champagnat, Julie and Guerroui, Samia and Vendeville, Marie-Louise and Boespflug-Tanguy, Odile and Duchange, Nathalie}, URL = {https://inserm.hal.science/inserm-01179381}, JOURNAL = {{European Journal of Human Genetics}}, PUBLISHER = {{Nature Publishing Group}}, VOLUME = {24}, NUMBER = {3}, PAGES = {338-43}, YEAR = {2016}, MONTH = Feb, DOI = {10.1038/ejhg.2015.115}, KEYWORDS = {Patient opinion. ; Rare disease ; Informed Consent ; Database ; Questionnaires ; Leukodystrophies}, PDF = {https://inserm.hal.science/inserm-01179381/file/Darquy%20et%20al.pdf}, HAL_ID = {inserm-01179381}, HAL_VERSION = {v1}, }